Wednesday, May 29

Desperate plea for mixed race donor to save life of boy, 7, with rare disease.


A seven-year-old boy is making a desperate plea to find a mixed race donor match for a life-saving bone marrow transplant. Asaya Bullock was born with a rare autoimmune disease, IPEX syndrome, which can be life-threatening in early childhood.The only cure is thought to be a bone marrow transplant from a matching donor - and although Asaya has been on the registry for most of his life, he hasn't yet found a match.Asaya's dad is African-American and his mum is Caribbean, but the registry is not representative of his ethnicity, ABC News reports.He and his family, from new York, are on a time sensitive search for a match. Asaya's mum Asaya Bullock told Good Morning America: "It's like a miracle that Asaya is still alive because the doctors only gave him two years to live."He was sick a lot and as [his] parents, we didn't know what was wrong with him."Little Asaya ha suffered from body aches and pains, memory loss, and stomach issues. He is in school but gets tired quickly because of his immune system.
The Be The Match website says: "If you could offer hope to someone dying from cancer, would you?"Joining the Be The Match Registry means volunteering to be listed as a potential blood stem cell donor, ready to save the life of any patient in need of a transplant. You could be someone’s cure. You could literally save a life."

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